Good Morning Teachers!
It’s gonna be one of those days...It’s 3:30am and I just woke up thirty minutes ago, after four and a half hours sleep. I tossed and turned for a minute or two then got up made some coffee and took my first dose of Sinemet for the day. I have to wait a while before I drink any of the coffee so it won’t interfere with the meds. I don’t know for sure if it would but I don’t want to take any chances. After about fifteen minutes of making the parody of the Beatles Album cover I had enough. I couldn’t think - I couldn’t stop squirming in my chair. I couldn’t stop hurting. So, I laid down on my "accidental buffalo" rug and tried to meditate and relax.
It only made me cold. I went back to our bedroom and crawled back in with Kathleen, where I slept another 3 hours. That was a wonderful 3 hours. I got up in time to make Kathleen’s oatmeal (steel cut) and see her off to work. Now I’m trying to finish but it’s not time to take another pill and my last one has worn off. I hate that jerk Dr. parkinson and the horse he rode in on. But that’s like blaming Edison for light pollution. It does make Kathleen and feel better to blame someone even if it’s just a joke. Poor Dr. p was just doing his job. Maybe I’ll start blaming Ringo. Time to stop - take another pill - and wait or its effects to kick in... Be back in a parkinsonian minute. Or should I say a Ringo minute...
Fab Four What?
Ringo was my favorite Beatle when I was a kid - I don’t know why. Maybe because he looked like he was having the most fun. All the girls loved Paul. John was rough and scary. George was too quiet and mysterious. Ringo was the guy for me. I ws only kidding above, I really don’t blame him for anything except writing some pretty silly songs when he was with the Beatles. But I do like the sound of that - "No, officer I’m not drunk... I have Ringo Disease.”
If you haven’t figured it out already this is one of my posts where I let the first picture I see that morning become the title. I then work with that letting the image do the writing for me. It usually works. But, this was the Beatles during a particulary rambunctious time in their lives, because they appear to have had too much fun last night, and I am paying the price for it this morning. If I had to blame a Beatle for that it would probably be John so I’ll blame him for my pd too. He was the one that our parents where the most afraid of - and rightly so. - RIP John, and I listened to what you were saying - give Peace a Chance.
I’m Going to Disney!!!
A lot of people with pd say that morning is the best time for them, symptom wise. It’s that way for me. The reason for this, as far as I can gather, is that your brain stores up dopamine while you sleep and aren’t using it. When you wake up, you wake up to a full supply of that wonderful chemical in your head making you normal for anywhere from ten minutes to two hours. Ten minutes to two hours - you never know which. But even if it’s no more than a minute, it’s a precious one, You wake up feeling like a kid again - a kid on the first day of summer vacation, and your family is going to DisneyLand and your Dad said he would let you drive some across the desert. And your Sister’s not going*. Life is glorious!
Then you realize you were looking at your grandfathers old 1938 calendar and it’s really the first day of Junior High. Junior High - a part of my life I would like to forget. I’m sure a lot of you feel the same way - For me, puberty was not a very glamorous time. The year before it was even worse. But, who cares now anyway - that was many years and many brain cells ago.
I’ve learned to grab ahold of these summer vacation moments and milk them for all they are worth - which is a lot. Grab hold of them - use them, and try not to think about the stupid rope I was going to have to grab in 3rd period gym. The burns on your hands - stupid rope - stupid Ringo Disease. I meant Lennon’s disease.
The ironic thing is that just because I had a hard night (little sleep - trouble waking up) doesn’t mean I am going to have a bad day. Also, if I had a great night (plenty of sleep - wake up refreshed and renewed) it doesn’t mean I’ll have a great day. You just can’t predict what will happen. If I sounds like I’m complaining - I am - but I’m also infinitely grateful for any good or “normal” moments I have and that there is a medication I can take that helps me lead a somewhat “normal” life. A hundred years ago I believe there would have nothing, that I know of, that could have made me feel "normal". I never thought I would hear myself say I wanted a “normal” life - that I wanted to be “normal". That’s probably the ironic part. Maybe it’s the quotations that make it “so".
Ironic is a very complicated word, often used improperly by people like me trying to appear educated - how “ironic".
Back in the Saddle...Again?
I have a gig this Saturday night with my old pal Eddy Cotton in Jacksonville FL. I am really looking forward to it - If you click on the image it will take you to a FaceBook event page. If you’re in the area I would love to see you there. If you come late I be the one playing the bass while lying on the floor. Can’t miss me. Come up and say the secret word and I’ll buy you a drink. I can’t tell you the secret word though - it’s a secret.
Joining us on drums is everyone’s favorite yacht salesman Mark Zigler - also many special guests and improvised entertainment explosions. See you there.
Ed and I (along with Mark) played in a band years ago in Jacksonville called “Pretty Boy Freud.” It was Ed’s band so it would be more accurate to say Mark and I played in Ed’s band...No matter which way you slice it we had some good times and good musical moments - we’ll see if we can recapture some of those moments Saturday Night - However - THIS IS NOT - I REPEAT - NOT A PRETTY BOY FREUD REUNION. Although we might play our big hit: "Shooters We Love Shooters"
This Saturday is where I plan on trying again a different method of working my meds, and all, for the performance. I do feel my best right after some good sleep, so I plan on setting up my equipment during the day and then, since I live right over the bridge from the club, going back home and taking at least a three hour nap. If all goes well I should be able to do the show with out much discomfort - if not - I’ll be the guy laying on the floor, still playing mind you - but stretched out on the floor - I’ll bring a yoga mat just in case.
Sometimes I have trouble taking a nap - my mind just won’t settle down. But, I now have a white noise machine and that, along with my sleep mask, a Valium, and my new relaxation music app for my iPad will probably do the trick.
It’s 10:30 and boy am I late getting this out - I feel like I’m skipping eighth grade math class.
My apologies to all my early morning readers - on days like today it’s a good time to go thru the blog archives ( I promise to make them more accessible soon) and catch up on the minutiae which is "My Life With Ringo - The Best Life I’ve Ever Had.” A very “ironic” title if i do say so myself.
Have a Great Weekend
All you need is love,
just say yes!
meet Andy Ward King, a professional musician and artist until a diagnosis of parkinons dsease at age 49 forced him into an early retirement., he now uses his music, his art along with the whimsical world he has created in this blog as therapy to ( as he puts it ) outsmart his brain and make the daily battles with parkinson’s a little bit easier, to give him that all important reason to get up on the morning, to make his life worth living. Andy has learned how to say NO to gving up \ NO to depression and apathy \ NO to following willingly the road of decline that stretches before him. he learned that to say no to all of these things all one has to do is say yes. Andy has learned to just say YES to life/\\