Good Morning Law Abiding Citizens,
I have a fear and even though some of the side effects of the medication I take are paranoia and confusion, I feel it’s justified. I carry this card and wear a med-alert bracelet to not only notify police, paramedics and medical personal of my condition, but also to let them know that I must take my pd medication or face some serious results.
Let’s say I decide to take a little walk I only have ID with me - no cell phone - no pills, only my ID that says who I am and a med- alert bracelet that says what my condition is. Ok. worst case (and I mean WORST) scenario. There is a robbery in the neighborhood with a fatal shooting of a home owner. The police are everywhere - on the ground - in the air - all looking for an armed and dangerous killer - who just so happens to fit my description. Middle aged white male, dark hat, black sweat pants, dark hoodie. 5’6” to 5’7” 150 lbs - stocky build. There are about 100 guys around here that look like that.
The police, on high alert, see me struggling, shaking as I pass by them, my meds have worn off, quickly this time, and I look like a drunken pirate walking down the sidewalk . A drunken pirate fitting the description of the wanted man. We’ve all seen enough cop shows to know what happens next. One thing for sure, I do not believe the cops, after they have thrown me in the back of the car with my hands cuffed behind my back (that itself would be extremely painful), would let me stop by my house and pick up my medicine. I could hear them now “parkinson’s ...right - that’s a new one - where you steal that bracelet? shut-up or I give you something to shake about.”
I’m not pulling this out of the air. Something similar happened to friend of mine just this past year. He had a stroke in the early morning hours on his way to work. A policeman, somewhat justifiably under the impression that anybody out at that hour was either intoxicated or up to no good or both, found my friend in his dazed condition. I instead of requesting immediate medical attention he treated my friend like a criminal, questioning and threatening him. Only after a more experienced officer arrived and recognized what was really going on were the paramedics called. My friend needed immediate medical attention.
If this worst case were to happen to me and I was denied my medication, I could die. I am not kidding - dead serious.
Following information from http://www.pdf.org
If you had been taking Sinemet for more than a few weeks, for example, and you stopped it suddenly instead of gradually, you could develop "neuroleptic malignant syndrome." This is a syndrome with manifestations that include very high fever, severe rigidity of all muscle in the body, delirium or coma. It is often fatal, even when treated. Thus, in general, you should never stop your anti-parkinsonian medications suddenly.
I did say worst-case scenario. I would like to believe that there are more good cops than bad. I’m sure there are. But it still bothers me. Both ends of the issue - the fact that unless I have access to this little oval pill I could die along with the sad fact that some in this world would deny me that pill.
I don’t know which is worse.
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just say yes!
meet Andy Ward King, a professional musician and artist until a diagnosis of parkinons dsease at age 49 forced him into an early retirement., he now uses his music, his art along with the whimsical world he has created in this blog as therapy to ( as he puts it ) outsmart his brain and make the daily battles with parkinson’s a little bit easier, to give him that all important reason to get up on the morning, to make his life worth living. Andy has learned how to say NO to gving up \ NO to depression and apathy \ NO to following willingly the road of decline that stretches before him. he learned that to say no to all of these things all one has to do is say yes. Andy has learned to just say YES to life/\\