Good Morning Medicated Masses
I talk a lot about the side effects of the parkinson’s medication I have to take to lead a somewhat normal life. I mention that sometimes I can’t tell which is worse the SE (side effects) or the condition. That’s is stupid of me. For, even though it’s like trying to put out a fire. Trying to put out a fire when you have a water pistol full of water in one hand and in the other, one filled with gasoline.
One rule - you have to use them both, and at the same time. Even though it’s impossible to take just he right amount of meds to accomplish the masking of the symptoms and also not cause any SE, I still try. Because I REFUSE to return to the condition I was in before I started taking the medication. I REFUSE!! But that’s a different chapter of this book.
I would like to take this time to list the side effects of the two parkinson’s medications I take. One is called Carbidopa/levedopa or Sinemet, the other is a transdermal patch (like a nicotine patch) called Neupro.
I am passing this info along definitely not to criticize these drugs or their manufacturers. Like I’ve said before - they gave me my life back. I’m passing them along because I realize I joke around a lot, I prefer silliness over seriousness any day. But, sometimes you HAVE to be serious because this is the part of the exam that counts.
FIRST SINEMET The Gold Standard...
This is taken directly from the patient info.
Call your doctor at once if you have any of these serious side effects:
If I experience any of these SE I report it to my neurologist immediately (email) and he takes the proper steps to get my medication straight. I see him again at the end of March. I’m having a little trouble with my off time ( period between doses when meds aren’t working) and we’ll disscuss that then.
Patch Things Up
Here’s a list of SE for Neupro...the other drug I take. Also taken directly from the patient literature
Neupro® (Rotigotine Transdermal System) can cause serious side effects, including:
That’s a lot of side effects!, and a lot of Lawyer hours right there I’ll tell you. And mainly that’s what it is - CYA. But those things did happen to someone during the drug approval process and they could happen to me. I have to always be on the look out. Kathleen wishes I took better records and I try . It’s just not in my nature. I need to change my nature. For as the words say there can be SERIOUS side effects.
I won’t tell which or if ny of these SE are happening to me. I also won’t go into what each medicine does, and whether or not it works for me, that’s between me and my doctor. And if you have pd it’s between you and yours. I would hate for someone to act on any info they received form this blog or website, until they talked to their Doctor, especially pertaining to something serious as medication. If you’ve recently been diagnosed with pd and you still have questions after seeing your Doctor ( you probably have more that when you went in) a good place to visit is HealthUnlocked.com There you will find a very informative moderated discussion where pepole can ask and discuss pd issues candidly. parkinsons is different for everyone that has it. What works for me might not work for you. Always tell your doctor what you are up to, and ask them questions. Ask them questions until you FULLY understand. Remember THEY WORK FOR YOU!
You can always email me at email@example.com where you can ask, and I can answer questions in a not so public forum.
just say yes!
meet Andy Ward King, a professional musician and artist until a diagnosis of parkinons dsease at age 49 forced him into an early retirement., he now uses his music, his art along with the whimsical world he has created in this blog as therapy to ( as he puts it ) outsmart his brain and make the daily battles with parkinson’s a little bit easier, to give him that all important reason to get up on the morning, to make his life worth living. Andy has learned how to say NO to gving up \ NO to depression and apathy \ NO to following willingly the road of decline that stretches before him. he learned that to say no to all of these things all one has to do is say yes. Andy has learned to just say YES to life/\\