Welcome to my world, well, at least one of them
This is from my latest FB entry
NOTICE!!! THIS IS ABSOLUTELY THE MOST IMPORTANT THING I WILL WRITE TODAY - THIS WEEK - THIS YEAR, AND POSSIBLY THE MOST IMPORTANT ITEM YOU WILL READ.
Having parkinson sucks, I can safely attest but i can only imagine, and I’m sure that pales when compared to reality, even with my deluxe imagination, how difficult life would be, how difficult every hour would be with that little monkey at the controls trying in his little monkey way to run your heart - mind - body - soul, a job he is ill equipped to do. I can only imagine the algebraic formal needed to calculate the misery compounded on a person if they where subject to parkinson’s and also found themselves homeless or living in abject poverty. I can only imagine.
And I do. I think about it every time I venture out into the real world - a world full of disenfranchised children of God. Many of whom, I would venture a guess have medical conditions such as pd. I also think about these - there but for the grace of god go I - people, when I am cradled in the safe and loving arms of my family and home. I am awesomely blessed and I thank my maker that these blessings aren’t only my imagination.
I CAN DO SOMETHING - YOU CAN DO SOMETHING - WE CAN DO SOMETHING
This Saturday starting at 2pm is the Gr00vyLånd BackYard Festival (Raising Awareness of Parkinson’s Through Art, Music, Love, and Laughter!)
There will be performances by local musicians, most from the Riverside area-Art show with silent auction - Henna - and much more, I also will be talking (using an angel to talk slowly - clearly - loudly) in small doses, throughout the day about parkinson’s - what it is, and how it has affected me and my family. The festival is open to the public - everyone is invited. Half of all the proceeds are being donated to, yet to be named, charities involved with parkinson’s. I just had this brainacaine this morning so bear with me. I am going to check with the director of the local pd support group to see if there is any organizations involved with helping homeless individuals with pd in Jacksonville. That is where I think the money should go. If there isn’t such an organization, well maybe there needs to be. See you Saturday.
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The Gr00vyland Backyard Fest has come and gone with the FabricatedMomentsInTruthVersesTime Corporation a division of AndyVerseForever deeming it a complete success - not rousing - not Earth moving, but complete. That’s not bad for our first time and and kind of spatial - maybe even 3 dot Spatial - since nothing in life is ever complete - There is always room for jello.
We raised around $300 (I will give you the exact amount as soon as it is collected, the dust settles and the checks clear) $300 that whoever we decide to donate it to didn’t have until we gave to them.
When Donovan first proposed the G. B. F. 50% of all proceeds were to be sent to a bonafide charitable organization earmarked for parkinson’s research. But, as usual, I kept on thinking about it. My thoughts kept returning to a place I did not want to be, a place no one in their right mind would ever want to find themselves. That dreadful location where not only did I have to face the daily hell this disease can promise. No cure...No relief...No hope - I also faced the concrete reality of a life with No Family - No Job - No Home. It would be to much to bear, it would suck, It would suck exponentially until it reached infinity. I can only imagine.
Donating to parkinson’ research is a noble idea, although somewhat self-serving since I stand to benefit from that research. And, as with all science, the wheels turn slowly, most likely any advances our $300 would help foster would not arrive until well after I’m gone. I want to help relieve some of the suffering my brothers and sisters in parkinsons are experiencing NOW. One of the ways I can do this is to help organizations that see to the basic daily needs of indigent individuals with parknsons or it’s cousins - MS - Alzheimer’s - Lou Gehrig’s etc. $300 could pay for a lot of rides to the Doctor - buy quite a few canes or walkers - or even pay for the snacks this yet to be found organization would have at their support group meetings. What they spend it on is up to them. If I cannot find such a local or regional entity the money will go to the Michael J. Fox foundation. I will let you know.
just say yes!
meet Andy Ward King, a professional musician and artist until a diagnosis of parkinons dsease at age 49 forced him into an early retirement., he now uses his music, his art along with the whimsical world he has created in this blog as therapy to ( as he puts it ) outsmart his brain and make the daily battles with parkinson’s a little bit easier, to give him that all important reason to get up on the morning, to make his life worth living. Andy has learned how to say NO to gving up \ NO to depression and apathy \ NO to following willingly the road of decline that stretches before him. he learned that to say no to all of these things all one has to do is say yes. Andy has learned to just say YES to life/\\